Key points
- NIMH says adults must have shown ADHD symptoms starting before age 12, so a diagnosis relies heavily on past reports of behavior.
- NIMH notes a provider may ask to talk with a partner, family members and friends, and may look at school reports or other childhood records.
- In a 2002 study, when adjusted for population prevalence, only 27% of adults retrospectively given a childhood ADHD diagnosis from self-report would be correctly identified.
- The same study found six childhood behaviors that most clearly told the groups apart: distractibility, concentration difficulties, complaints of inattention, acting before thinking, being on the go, and fidgeting or squirming.
- UK NICE guidance calls for observer reports in an ADHD assessment and says exclusion based on an uncertain time of onset is not recommended.
Many adults are surprised when an ADHD evaluator spends so much time on their childhood. You came in about missed deadlines and lost keys, and you are being asked about third grade. This page explains why, who to ask, what to ask, and what to do if asking family is not possible.
Why evaluators ask about childhood
ADHD is considered a developmental disorder. NIMH explains that adults must have shown symptoms much earlier, starting before age 12, and that this requirement complicates adult diagnosis: a diagnosis relies heavily on past reports of behavior. To help, NIMH says a primary care provider or mental health professional may ask to talk to people who know you well, such as a partner, family members and friends, to learn about your behavior in different situations and during childhood. They may also look at school reports or other childhood records.
UK guidance from NICE describes the same approach. It says a diagnosis should rest on a full clinical and psychosocial assessment, a full developmental and psychiatric history, and observer reports. A 2024 review for US family physicians in American Family Physician likewise lists the gathering of collateral information, meaning information from people other than the patient, as part of an adult ADHD evaluation.
Why your own memory is not enough
This is not about whether you are honest. It is about how memory works. A 2002 study in the American Journal of Psychiatry followed children with and without ADHD for 16 years. At an average age of 25, clinicians who did not know the participants' history asked them about childhood ADHD behaviors. When the results were adjusted for how common ADHD is in the general population, the positive predictive value was 0.27: of all adults retrospectively diagnosed with childhood ADHD from their own reports, only 27% would be correctly identified. The authors stressed the importance of obtaining contemporaneous information on childhood symptoms, meaning information recorded or observed at the time.
That is why a parent's description or an old report card can carry so much weight.
Who to ask
| Person | What they can usually describe |
|---|---|
| Parent or main caregiver | Early childhood, homework, school meetings, teacher feedback |
| Older sibling | Day-to-day behavior at home, how you compared with siblings |
| Grandparent, aunt or uncle who saw you often | Behavior at family gatherings, holidays, visits |
| Childhood friend | Behavior with peers, in class, in activities |
| Partner or close friend now | Current behavior across settings (not childhood, but useful too) |
One careful account is more useful than several vague ones. If more than one person is willing, ask them separately so their memories do not blend.
How to start the conversation
Keep the opening simple and low-pressure:
"I'm getting evaluated for attention problems, and the doctor wants to know what I was like as a kid. Would you be willing to tell me what you remember? There are no right answers."
Some parents feel defensive, worried that the question is a criticism of how they raised you. It can help to say that you are not looking for anyone to blame, and that the evaluator simply needs a picture of childhood behavior.
What to ask
Ask about behaviors, not labels. "Did I have ADHD?" invites a yes or no that tells the evaluator little. Questions tied to concrete situations work better. The 2002 study found six childhood behaviors that most clearly told the groups apart: distractibility, concentration difficulties, complaints of inattention, acting before thinking, being on the go, and fidgeting or squirming. Questions built around those areas:
- What did teachers say about me at parent-teacher conferences?
- Was homework a struggle? How long did it take, and did someone have to sit with me?
- Did I lose things often: homework, jackets, lunch boxes?
- Was I easily distracted, or did I daydream a lot?
- Could I sit through meals, car rides, religious services or movies?
- Did I interrupt, blurt out answers, or have trouble waiting my turn?
- Did I act before thinking, or get hurt often doing risky things?
- Was I always on the go, climbing or running when others were sitting?
- Did anyone ever suggest an evaluation, tutoring or a learning assessment?
- How did I compare with my siblings or classmates?
Try not to lead. "Was I hyper?" can pull an answer toward yes. "What was I like in class?" leaves room for what they actually remember. Write down their answers, including examples and roughly what ages they are describing.
Records worth looking for
- Report cards, especially teacher comments such as "needs to stay focused" or "careless errors". NIMH lists school reports among the records a provider may review.
- Earlier evaluations, such as school testing, counseling notes or a childhood diagnosis.
- Pediatric records, if a pediatrician ever discussed attention or behavior. In New York, Public Health Law section 18 gives patients a right to inspect their records within ten days of a written request. In New Jersey, N.J.A.C. 13:35-6.5 requires physicians to provide records to a patient within 30 days. Older records may no longer exist.
If you cannot ask family
Not everyone can. Parents may have died, relationships may be strained, or family may not remember. That does not rule out an evaluation. NICE guidance says exclusion based on an uncertain time of onset is not recommended. Evaluators can work with what is available: your own detailed history, a partner's account of current behavior, school records and the course of your life since. It may take more care, and sometimes the answer stays less certain. The New York guide covers this in ADHD evaluation without childhood records, and the landing page on late ADHD diagnosis in adults has more on adults evaluated later in life.
Your privacy and your choice
You decide whom to involve. Some people prefer to collect a written account from a parent and bring it themselves rather than having the evaluator call anyone. Others are happy for the clinician to speak with a family member directly. Ask the clinician how they prefer to gather this information and what they will do with it.
When to talk to a clinician
You do not need to finish this homework before booking. Start the conversation with family, gather what you can, and bring it to the evaluation. If you are still deciding whether an evaluation makes sense, see when to get evaluated for adult ADHD, or take the adult ADHD self-test as a starting point.
Dr. John C. Shershow, M.D. is a psychiatrist who focuses on adult ADHD and sees adults located in New York or New Jersey. His adult ADHD evaluation covers current symptoms and childhood, school and work history, along with health and other possible explanations. See adult ADHD testing in NYC or in New Jersey. To start, call the office or use the call-back form.
Questions
Why does an ADHD evaluation ask about my childhood?
Adult ADHD requires symptoms that started before age 12, according to NIMH. Because that depends on past behavior, evaluators often ask for reports from family and look at school records.
Isn't my own memory of childhood enough?
Often it is not. A 2002 study found that adults' self-reports of childhood ADHD symptoms were frequently inaccurate once adjusted for how common ADHD is, and the authors stressed getting information recorded or observed at the time.
What should I ask my parents?
Ask about specific behaviors: what teachers said, whether homework was a struggle, losing things, daydreaming, sitting still, interrupting and acting before thinking. Avoid asking 'Did I have ADHD?' and write down their examples and the ages they describe.
What if my parents are not alive or I am not in touch with them?
You can still be evaluated. Other sources include siblings, relatives, childhood friends, old report cards and earlier records. UK NICE guidance says an uncertain time of onset should not on its own exclude a diagnosis.
Will the doctor call my family without asking me?
Ask the clinician how they gather this information. Many people bring a written account from a family member, and others agree to a direct conversation. You can decide whom to involve.
Sources
- NIMH: ADHD in Adults, 4 Things to Know (NIH Publication No. 24-MH-3573)
- Mannuzza S et al. Accuracy of adult recall of childhood attention deficit hyperactivity disorder. American Journal of Psychiatry 2002;159(11):1882-1888 (PubMed)
- NICE (UK) guideline NG87: Attention deficit hyperactivity disorder, diagnosis and management, recommendations (last updated September 13, 2019)
- Olagunju AE, Ghoddusi F. Attention-Deficit/Hyperactivity Disorder in Adults. American Family Physician 2024;110(2):157-166
- New York Public Health Law section 18: Access to patient information
- N.J.A.C. 13:35-6.5: Preparation of patient records, access to or release of information (Cornell Legal Information Institute)
